Perth Charity Walk Raises Funds for Duchenne Muscular Dystrophy Children
The Save Our Sons Foundation has successfully concluded a four-day, 92km walk across Perth, dedicated to raising funds and awareness for children affected by Duchenne muscular dystrophy. The event, known as Walk 4 Duchenne, brought together families, supporters, and volunteers in a powerful display of community solidarity.
Inspiring Participants Drive the Cause Forward
Among the walkers was 13-year-old Joshua Jones, who lives with Duchenne muscular dystrophy. With the support of his family, Joshua completed the entire journey in his wheelchair, showcasing remarkable determination. "He hasn't stopped smiling the whole time," said his mother, Michelle Jones. "I thought he would only do one day, but he's done all four, he absolutely loves it."
Duchenne muscular dystrophy is a severe muscle-wasting condition that typically makes walking impossible for children between the ages of seven and twelve. There is currently no cure, and life expectancy is often short, making events like this crucial for funding research and support services.
Dedicated Supporters Make Long-Term Commitments
Leanne James, a 63-year-old participant from Melbourne, has been involved in the walk for 11 years. She made a personal vow to continue until a cure is found. "I'm a mum, I'm a grandma, and so it just pulled on my heartstrings to see children that want to be included," she explained. Over the past decade, James has raised $180,000 for the Save Our Sons Foundation through her efforts.
In a touching tribute, James keeps a list of children's names in her shoe during the walk, including those who have passed away from the condition. "Every step I take, I'm walking with those children's names in mind and in memory," she shared.
Foundation's Personal Mission and Impact
The Save Our Sons Duchenne Foundation, Australia's leading charity for Duchenne muscular dystrophy, was founded by Elie Eid in 2008 after his son Emilio was diagnosed in 2006. "I was told to take him home and enjoy him while I still had him," Eid recalled. "I had no intentions on losing him. I set up the charity as my fight for my son and it's become our fight for all our sons and daughters."
This year, Emilio celebrated his 22nd birthday, a milestone that once seemed uncertain. The Walk 4 Duchenne event raises approximately $1 million annually, funding nurses trained in muscular dystrophy care and supporting clinical trials in Australia. "We just want to get our families access to care, better care and quality care," Eid emphasized.
Community and Corporate Support
The walk included stops at 16 Chemist Warehouse stores across Perth, with the national pharmacy chain actively supporting the initiative. Since its inception in 2015, Walk 4 Duchenne has become the flagship fundraising event for the Save Our Sons Foundation, highlighting the ongoing need for research and family support in the fight against this debilitating condition.
